Best Online Portal for Instagram | Trending Topics | Privacy Policy

Photos, videos and stories from instagram posts tagged with #stargardts

Images, videos and stories tagged with #stargardts

Instagram media - Its worth it all, really is ♡ Its stressful, its crazy but my god its rewarding… 2133699508164803022
It's worth it all, really is ♡ It's stressful, it's crazy but my god it's rewarding is this parenting malaki ain't it?! . • #MumBlog #BlindBlog #ThatBlindishMum #VisuallyImpaired #RNIB #SightImpaired #SightLoss #Stargardts #MacularDystrophy #Motherhood #Son #Blogger #MacularSociety #Equine #Equestrian #BlindRider #HonestMum • . PHOTO DESCRIPTION: My 1 year old son sat with his back towards the camera facing the left as he looks over Leeds Docks. In the background of the picture you can see apartment around the Leeds canal
Instagram media - Entrenamiento de final de la primera semana de septiembre completado con éxito familia… 2133531353073925935
Entrenamiento de final de la primera semana de septiembre completado con éxito familia de Instagram. Tras dos días que no he podido salir a entrenar a causa de asuntos del nuevo curso y del tiempo que ha hecho que durante el viernes y el sábado estuviera lloviendo durante gran parte de los días pues hoy hemos tenido que volver a retomar los entrenamientos, al principio con unas sensaciones de sobrecarga en el gemelo pero luego se ha ido pasando y por suerte ha ido mejorándose a medida que iba haciendo kilómetros. La temperatura ha sido la ideal, con una humedad que ha hecho que no hiciera un calor extremo ni un frío de otoño-invierno. Así que muy contento por el entreno que ha salido hoy y con ganas de afrontar la nueva semana. Así que mañana volvemos a la carga 💪🏻💪🏻 Hasta mañana! #stargardts #enfermedadesraras #aporello #aputotope #soyrunner #norendirse #iamready #yeahh #nuevosretos #jomasport #luanvi #axa #edp #ibercaja #123acorrer #vamosforrest🐝
Instagram media - Its the little things in life ♡ . • #MumBlog #BlindBlog #ThatBlindishMum #VisuallyImpaired… 2133030140128846784
Instagram media - So chuffed to get a new 5k PB by 32 seconds last night at the Lancaster Power of… 2132902634604806576
So chuffed to get a new 5k PB by 32 seconds last night at the Lancaster Power of 5k race, finished first lady with a time of 18.30. 😅💪🏼 Nearly didn’t even go to the race as I didn’t think I was fit enough yet, having just finished the track season and only just started my winter training. So glad I did though, sometimes you need to just go for it! 💪🏼🤞 #hokaracer #garmin #sthelenssuttonac #lancasterrunners #powerof5k #saltayreleisurecentre #5kpb #5krun #sub19 #thisgirlcan #stargardts #stargardtsdisease #stargardtsfighter #stargardtsawareness #visuallyimpaired #visuallyimpairedrunner #paraathlete #paraathletics #runfast #raceday #raceready #lifeisaracetosatisfaction #runitfast #instarunning #instarunners #madetorun #madetorunsthelens #borntorun #runhappy #runeveryday
Instagram media - Alice Cadman (@life_as_a_vip) is a singer, entrepreneur and educator from London… 2132196656350025574
Alice Cadman ( @life_as_a_vip) is a singer, entrepreneur and educator from London who has Stargardt disease. This is Alice's description of this beautiful photo: Alice looking through a monocular at a view of the Dordogne river and hills and trees in the background. The sky is blue with some clouds and the sun has gone down a little. She wrote in her original post: "This is my monocular. It is one of the most useful things I’ve found to help with my vision loss and I use it a lot. It is useful for things at a bit of a distance, and enlarges things so much that my missing patch seems small in comparison. It is most useful for the theatre or for looking at a view like this lovely one in the Dordogne. Using it does tire my eyes out a bit so I can only use it for a short space of time, but I would highly recommend it to anyone with central vision loss!". #VisuallyImpaired #VisualImpairment #VisionImpaired #Blind #Blindness #SightLoss #Stargardts #StargardtsDisease #Marqueyssac #Dordogne
Instagram media - Love this meme 👁 Where do you see yourself in one year? I don’t know, I don’tbhave… 2131922399141626312
Love this meme 👁 Where do you see yourself in one year? I don’t know, I don’tbhave 2020 vision 😂 Being ablo to use humor to cope with the difficult things in life is important. I’m grateful to have my amazing friend @juliequermia to share and joke about ‘low vision struggles’. It’s like only people who experience a similar thing can truly understand and laugh about the same, while others would call it sad or tragic. But we know that the things we do, think and experience is colored by our low vision and we can only cry of laughter and joy because we understand each other. And that is everything ❤️
Instagram media - Sometimes I seem to forget I dont see normal like its been the normality for… 2131533177730378994
Sometimes I seem to forget I don't see "normal" like its been the normality for over 7 years now but when you get forms to fill in and have to explain to 'professionals' how you see, how it affects you and limits your daily life it hits you...again. It makes you realise the smaller side of the impairment, the side which you seem to almost dismiss. Can I cross the road safely? Can I walk up stairs ok? Can I see hazards and dangers? Can I press buttons? Type and read letters? Can I cook ok? Shower and bathe? - its almost as if it's so normal to you you forget it isnt in fact the "normal" way to do things. I always wait for the green man now and hold the little button underneath and won't think about risking it even though there's no cars on the road. I kick the steps as I walk down them, feel them with my feet if the lighting ain't right or I'm having a bad day. I can't see hazards until they're right by my side. I use my magnifyer and zoom more than I realise and I'm glad i don't have a gas flame cooker because my hair would 100% be set a light more than once trying to sort the hobs out. And let's pretend I didnt almost use hair removal cream to brush my teeth before or use shower cream thinking it was shampoo 🤦‍♀️ it's just a way of life now so I think no different of the little things although they do actually mount up and change things so much when you really sit down and think! . • #MumBlog #BlindBlog #ThatBlindishMum #VisuallyImpaired #RNIB #SightImpaired #SightLoss #Stargardts #MacularDystrophy #Motherhood #Son #Blogger #MacularSociety #Equine #Equestrian #BlindRider #HonestMum • . PHOTO DESCRIPTION: A selfie of me with my hair in a bun and smiling at the camera. I'm wearing a Nike camouflage hoodie and the background is blurred.
Instagram media - If I was stood in a room with 50 other people, would you know that I am the one… 2131491602546752529
If I was stood in a room with 50 other people, would you know that I am the one going blind? Would you know just by looking at me how much I struggle to see my children’s faces or how I can no longer read easily from a book or that watching TV is becoming really difficult? Would you know just from looking at me that I have flashing lights in my central vision all the time and doing my make up every day is really hard work for me? The answer is no, you wouldn’t think any of this just by looking at me. . . Not everyone losing vision has a cane or a guide dog, I don’t and I may never need one, but I will probably still be classed as legally blind in the not so distant future. I can still use a phone because technology has come a long way and is very accessible for the visually impaired. Just because I use a phone, it doesn’t mean that I still don’t struggle to see what is on it. . . The point of this post is that by looking at me, you can’t tell the struggles that I go through daily and the heartache I have from knowing that one day I will have a large portion of my vision missing and there is nothing I can do about it. This post is just a simple reminder to all, to be a little bit kinder and a little less judgemental, as we can’t ever tell what someone is truly hiding just by going by what we think we know from looking on the surface ❤️ . . . Picture Description - a close up of me with my brown hair down. I am wearing full make up and pink lipstick and have a flowery black top on. I am standing in front of grey wallpaper with flamingos on. . . . #BeKindAlways #JudgeLess #Stargardts #SightLoss #Rnib #MacularSociety #RaisingAwareness #MumBloggerUk #MummyBlogger #WritingCommunity #KatiesVision #BoyMum #MyLife #BloggersUnite #BloggingGals #Rare #Genetic #FaceMakeUp #honestMum #ChronicDisease #KatiesVision #Eyes #DiscoverUnder10k #SmallBlogger #DailyStruggles #RealLifeStory #Inspire #SpeakOut
Instagram media - Absolutely inspiring podcast from @joerogan and @davidsinclairphd As a person who… 2131423319614670879
Instagram media - New place new me new mind Holidays give you clarity, understand and time to self… 2131216680348381359
New place new me new mind Holidays give you clarity, understand and time to self reflect on the person that you are at home. While you’re on holiday you have no worries or stress and you’re simply happy. It made me realise all these things are possible to feel while I’m at home as well. Find something that allows you to find your happy place even when you aren’t on a holiday. The beach is my happy place. If you feel you’re losing yourself in negativity go to your happy place and re centre yourself so you feel happy again. It’s time to appreciate the place we are in and find the positives. I value self happiness, I think everyone needs to put the effort into themselves to find their happiness. Grow and evolve with each and every experience. #new #wanaka #newzealand #selflove #happiness #grow #evolve #newmind #appreciate #holifay #reflection #happyplace #discoveryou #stressless
Instagram media - Thanks for all your birthday wishes 🎉 Its greatly appreciated 🙏🏼 The greatest gift… 2130932578713974338
Thanks for all your birthday wishes 🎉 It's greatly appreciated 🙏🏼 The greatest gift 🎁 you can ever give someone is your time. While it may not always be needed, encouragement and support will always take us further in life. ✨ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ So let's continue to inspire and motivate each other to be stronger each day 💪🏼💪🏼 - - - #inspire #inspiration #motivation #motivate #thankful #blessed #happy #smile #appreciate #encourage #support #gift #life #love #strong #healthylifestyle #fitlife #fitat40 #fitover40 #instafit #fitguys #asian #pdxfitness #legallyblind #visuallyimpaired #stargardts
Instagram media - Familia de Instagram: Seguimos mejorando con el entrenamiento de hoy miércoles 11… 2130801594594407132
Familia de Instagram: Seguimos mejorando con el entrenamiento de hoy miércoles 11 de septiembre de 2019. Después de las series de ayer, hoy me tocaba un entrenamiento de 7k a un ritmo de 6-6:20. No ha ido mal el entrenamiento, pero lo que ha pasado es que me he venido arriba 😂😂. ¿Y que es lo que pasa? Pues que en vez de hacerlo en 6-6:20 los he acabado haciendo a 5-5:49. No está nada mal, pero me tenia que haber ceñido al plan de entrenamiento. Pero bueno esto me tenia que pasar más que nada para seguir mejorando y para cumplir el plan de entrenamiento que tengo previsto para la @mediomaratonvlc y para el resto de carreras como #lacarreradelcorazón y alguna más antes de enfrentarme a Valencia. Así que nada mañana descanso y volvemos el viernes con más entrenamientos dándole fuerte 💪🏻 y siguiendo nuestro plan de entrenamiento! #stargardts #enfermedadesraras #aporello #aputotope #soyrunner #norendirse #iamready #yeahh #nuevosretos #jomasport #luanvi #axa #edp #ibercaja #123acorrer #vamosforrest🐝
Instagram media - I don’t know where I would be without this one by my side! I’ve been struggling… 2130766108064469052
I don’t know where I would be without this one by my side! I’ve been struggling lately I’m not one to sit and cry for long I get upset and then brush it off and pick myself back up again! But this week has been tough for me! I’ve never felt so alone with what this disease is doing to me! I know so many people on here who are going through the same! Vision loss is the hardest to deal with you take it for granted so much! I’m always a positive and strong person the way my mum raised me! But sometimes I just want to curl up and just forget it all! But it’s hard to forget because when ever you open your eyes first thing in the morning it’s there straight away hitting you that yep kay your blind! I’m fed up and wish this disease would do one lol! #sightforkay #stargardts #visionloss
Instagram media - I am a singer, running my own company with my husband and a friend. Our company… 2130758899522216550
I am a singer, running my own company with my husband and a friend. Our company is called Sing Education and we provide primary school music education! With my sight loss, I do find it helpful that I run my own business as this does allow me to make decisions to make my work adaptable, flexible and accessible. I use assistive technology to do most things in the office. When I’m teaching, I have to make sure I am extra prepared so that I can see what I need. I do find it hard not being able to see children’s faces but I work around it and get to know names in other ways. I’m not able to read normal printed music now but I can use my iPad to enlarge it and this helps, although this isn’t a perfect solution. There are lots of things I used to do in my working life that I wouldn’t be able to do now, however with good preparation and adaptations I feel confident in my work and continue to get so much out of it. #CentralVisionLoss #gadget #RNIB #Stargardts #StargardtsDisease #StargardtsConnected #VisionLoss #SightLoss #PartiallySighted #VisuallyImpaired #MacularDegeneration #Disability #DiscoverUnder1k #OOOTD #RareDisease #MacularSociety #work #Business #Entrepreneur #Awareness #teaching #teacher #MusicTeacher #Singer Picture description for #accessibility - a pink circle with a quote saying “Question 10: Has Stargardts affected your work?”. In the background Alice is singing as part of a Gospel choir. Alice is standing with two friends singing round a microphone. The choir are wearing blue and white.
Instagram media - Learn to NOT fear failure 🚫 - Anyone who has never made a mistake, has never tried… 2130667127303354741
Learn to NOT fear failure 🚫 - Anyone who has never made a mistake, has never tried anything new - Our education system leads us to believe that making a mistake is the worst possible thing you can do — well, they’re WRONG! - The worst thing you can do is lose your creative flow + the #1 enemy of creativity is the fear of failure. Know your worth and play that game! 💛
Instagram media - Posted @withrepost • @blindandfit Still huffing & puffing away as I turn the page… 2130213321176975887
Posted @withrepost@blindandfit Still huffing & puffing away as I turn the page into a new decade 😂 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Day 10 @warriorsofawareness Buns & Guns Challenge for Autoimmune & Mental Health Awareness 🔥 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I finally got around to doing some legs but I'm thinking it might not have been the best choice for a birthday workout 🙃 I tried to keep things simple but kettlebells aren't a piece of cake 🍰 It was quite a sweat session 😅 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 4 rounds: 🔔 Kettlebell Goblet Squats 🔔 Kettlebell swings 🔔 Kettlebell Step Back Lunges 🔔 Kettlebell Side Lunges ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Going need to keep pushing for that invite to the Fit Over 40 club 💪🏼💪🏼 - - - #warriorsofawareness #autoimmune #mentalhealth #mentalhealthawareness #bunsandguns #bunsandgunschallenge #kettlebell #sweatsession #happybirthday #birthday #legs #legday #fitover40 #fitat40 #fitnessjourney #gymlife #goals #bodybuilding #fitness #fitlife #fitmotivation #fitspiration #instafit #healthy #workout #pdxfitness #blind #blindandfit #stargardts
Instagram media - Still huffing & puffing away as I turn the page into a new decade 😂 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Day… 2130200757827193123
Still huffing & puffing away as I turn the page into a new decade 😂 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Day 10 @warriorsofawareness Buns & Guns Challenge for Autoimmune & Mental Health Awareness 🔥 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I finally got around to doing some legs but I'm thinking it might not have been the best choice for a birthday workout 🙃 I tried to keep things simple but kettlebells aren't a piece of cake 🍰 It was quite a sweat session 😅 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 4 rounds: 🔔 Kettlebell Goblet Squats 🔔 Kettlebell swings 🔔 Kettlebell Step Back Lunges 🔔 Kettlebell Side Lunges ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Going need to keep pushing for that invite to the Fit Over 40 club 💪🏼💪🏼 - - - #warriorsofawareness #autoimmune #mentalhealth #mentalhealthawareness #bunsandguns #bunsandgunschallenge #kettlebell #sweatsession #happybirthday #birthday #legs #legday #fitover40 #fitat40 #fitnessjourney #gymlife #goals #bodybuilding #fitness #fitlife #fitmotivation #fitspiration #instafit #healthy #workout #pdxfitness #blind #blindandfit #stargardts
Instagram media - This is my monocular. It is one of the most useful things I’ve found to help with… 2130085332442903975
This is my monocular. It is one of the most useful things I’ve found to help with my vision loss and I use it a lot. It is useful for things at a bit of a distance, and enlarges things so much that my missing patch seems small in comparison. It is most useful for the theatre or for looking at a view like this lovely one in the Dordogne. Using it does tire my eyes out a bit so I can only use it for a short space of time, but I would highly recommend it to anyone with central vision loss! Picture description for #accessibility - Alice looking through a monocular at a view of the Dordogne river and hills and trees in the background. The sky is blue with some clouds and the sun has gone down a little. In the second picture, Alice is standing in the gardens, wearing an orange sleeveless blouse and a skirt/shorts with orange palm trees on it. #CentralVisionLoss #gadget #camping #View #Marqueyssac #MarqueyssacGardens #ViewsForDays #CampingHoliday #Dordogne #Sarlat #RNIB #Stargardts #StargardtsDisease #StargardtsConnected #VisionLoss #SightLoss #PartiallySighted #VisuallyImpaired #MacularDegeneration #Disability #DiscoverUnder1k #OOOTD #SecondHandSeptember #RareDisease #MacularSociety
Instagram media - Well...I made it !!! 🙌🏼 It seems somewhat strange that birthdays are rarely set… 2129898253448922695
Well...I made it !!! 🙌🏼 It seems somewhat strange that birthdays are rarely set as goals but almost always celebrated 🤪 It's probably not where I had hoped to be turning 40 but I can always hope the sky is still the limit 🤞🏼 While I ponder that thought, I might endulge myself in some blessings 🙏🏼 better known as strawberry shortcake 🍰 I already celebrated earlier with some waffles and strawberry toppings 😋 Anyone else notice a theme? 😉 - So what's your favorite cake or favorite way to celebrate your birthday? 🎈🎉🎁 - - - #happybirthday #birthday #happy40th #40thbirthday #happy #smile #celebrate #goals #blessings #thankful #cake #strawberryshortcake #love #hope #wish #endulge #health #pdx #portland #asian #blind #blindandfit #blindness #legallyblind #visuallyimpaired #stargardts
Instagram media - Entrenamiento de series completado con éxito familia de Instagram. Hoy os tenía… 2129894818198039341
Entrenamiento de series completado con éxito familia de Instagram. Hoy os tenía una sorpresa, y era que las series a partir de ahora las vamos a hacer en pista de Atletismo. Primero porque no me convence hacerlo en la calle. Y Segundo porque es mejor. Así que cuando he acabado la presentación de mi nuevo curso me he cogido la ropa deportiva y me he ido hacia la pista de atletismo de Alcorcón. Y la verdad es que al principio he iniciado las series en un ritmo de 5.01 y he tenido un ritmo constante que me ha dejado muy buenas sensaciones. Al final me he quedado en 10k en una marca de 51:30 a dos minutos de mi marca en carrera de esta distancia. 51:28. Pero con el tiempo se conseguirá bajar 💪🏻💪🏻 y seguir mejorando. Las series de hoy han venido para coger confianza en las piernas y ir mejorando. Mañana me toca un entrenamiento de 7 kilómetros que pinta bastante interesante. Así que mañana más y mejor familia! #stargardts #enfermedadesraras #aporello #aputotope #soyrunner #norendirse #iamready #yeahh #nuevosretos #jomasport #luanvi #axa #edp #ibercaja #123acorrer #vamosforrest🐝
Instagram media - My happy place Loving the summer weather, being able to sit at the beach everyday.… 2129764831095298416
Instagram media - surprise! A small batch of the DNA tees are now up 🧬 🚨 The last of these bad boys… 2129667141040296343
surprise! A small batch of the DNA tees are now up 🧬 🚨 The last of these bad boys available for purchase! So if your into a bit of blue - grab one while you can at mattdegruchyvision.com 📲
Instagram media - Posted @withrepost • @blindandfit Warming up the arms Day 9 @warriorsofawareness… 2129520460768917521
Posted @withrepost@blindandfit Warming up the arms Day 9 @warriorsofawareness Buns & Guns Challenge for Autoimmune & Mental Health Awareness 💪🏼💪🏼 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ All rested and recharged 😂 A restful weekend means I'm ready to get the arms pumping again 🏋🏼‍♂️ Finally added some drop sets to my arm routine and it truly is a different kind of burn 🔥 Always feels great to return to an intense pump 🙌🏼 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Let's continue to get after it 💪🏼💪🏼 - - - #warriorsofawareness #autoimmune #mentalhealth #mentalhealthawareness #bunsandguns #bunsandgunschallenge #warrior #mondaymotivation #inspiration #gunshow #arms #armday #armpump #curls #biceps #triceps #gains #bodybuilding #fitness #fitlife #fitmotivation #fitover30 #instafit #healthandfitness #workout #pdxfitness #blind #blindandfit #stargardts
Instagram media - Warming up the arms Day 9 @warriorsofawareness Buns & Guns Challenge for Autoimmune… 2129505269385582198
Warming up the arms Day 9 @warriorsofawareness Buns & Guns Challenge for Autoimmune & Mental Health Awareness 💪🏼💪🏼 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ All rested and recharged 😂 A restful weekend means I'm ready to get the arms pumping again 🏋🏼‍♂️ Finally added some drop sets to my arm routine and it truly is a different kind of burn 🔥 Always feels great to return to an intense pump 🙌🏼 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Let's continue to get after it 💪🏼💪🏼 - - - #warriorsofawareness #autoimmune #mentalhealth #mentalhealthawareness #bunsandguns #bunsandgunschallenge #warrior #mondaymotivation #inspiration #gunshow #arms #armday #armpump #curls #biceps #triceps #gains #bodybuilding #fitness #fitlife #fitmotivation #fitover30 #instafit #healthandfitness #workout #pdxfitness #blind #blindandfit #stargardts
Instagram media - While I was on the plane over to the UK, I thought what the F am I doing ✈️ 🇬🇧 but… 2129458577756463711
While I was on the plane over to the UK, I thought what the F am I doing ✈️ 🇬🇧 but once I landed I knew it was going to be the best decision I had ever made! #london 🙏 Thanks for the support this last year since starting MDV, forever blown away by everyone’s stories, passion & determination - disABLED or not... you are all legends! Can’t wait to launch the 20/20 experience 👁
Instagram media - Moving forward. Before I go out with my cane, I feel insecure. Maybe today I can… 2129411051627357176
Moving forward. Before I go out with my cane, I feel insecure. Maybe today I can walk without it again? I ask muself. Yeah, like my vision will come back or something. Then I look at the time, f*ck, I need to hurry up or I'll miss my train. Because I can't drive mu own car or bike, my transportation doesn't wait for me at my doorstep. So I go out with my cane in my hand and start walking fast. Heart racing, I am scared that the car behind me doesn't know I want to cross the street. Phew, lucky I have my cand with me. Oops, there is a step I judged wrong and almost tripped. No worries, my cane had my back. As I walk I notice the sidewalk is calm and no one runs in my way. what a relief, I used to try to zigzag through, hoping I saw it right when someone came my way or walked in theother direction. Almost there. I hear the train coming in the station. I walk faster. A minibus drives weird before me. My heart races again. Where do I go? Where is that bus driving exactly? Suddenly the bus drives backwards and stands still as I walk closer. My cane again saved me from a headache later in the day. The train is full, I can't see where to sit. I just stand there, I was not planning on trying to find a seat. Some guy tells me that there is an empty seat closeby and asks me if he can help me to get to it. I try to look at the seat but can't see it. I say sure you can help me. He gives me his big arm and guides me to my seat. Thank you for making my day just a little easier, white cane. #whitecane
Instagram media - Some days I spend the majority of the time stressed, I shout a lot, I get mad easily… 2129372493341041028
Some days I spend the majority of the time stressed, I shout a lot, I get mad easily and I have next to no patience. Some days I want to sit and cry, run to my mum and ask how the hell do I be a parent. Some days I have no idea how I've kept the child safe because it was far too much effort dragging myself out of bed. Some days I feel absolutely awful admitting I struggle, admitting that I feel stuck in the current position. Some days I don't like being a parent, the tears tantrums and attitude gets too much. Some days I don't know how or what has happened to make time pass as i watch the clock for bedtime just so i can lay in silence for a little bit. And these days I struggle and question every choice and judge myself for doing so. The anxiety, the worry, the emotions and the self judgement, it's all part of it. Part of the life of a parent and it's a crazy part noone warns you about. Yeah, its exhausting but not in the lack of sleep way, it's exhausting mentally and emotionally and some days are damn right difficult, especially when some days the first thing you think when you wake up is "I don't have a clue how to even parent today" but somehow we make it through another day, look at that sleeping child and feel blessed to have them . • #MumBlog #BlindBlog #ThatBlindishMum #VisuallyImpaired #RNIB #SightImpaired #SightLoss #Stargardts #MacularDystrophy #Motherhood #Son #Blogger #MacularSociety #UKBlogger #InstaBlog #HonestMum #ItsAllWorthIt • . PHOTO DESCRIPTION: A close up of my son laid asleep on my chest as I have my hand in his hair looking into the camera.
Instagram media - Entrenamiento de inicio de semana completado con éxito familia de Instagram. Después… 2129361823653182228
Entrenamiento de inicio de semana completado con éxito familia de Instagram. Después del Cross del sábado hoy he preferido ir a un ritmo suave en los primeros kilómetros para ir recuperándome poco a poco. Hoy no ha importado el tiempo, apenas le he echo caso al reloj y he estado más pendiente de esforzarme y de disfrutar. En los primeros kilómetros he ido despacio, y a partir del kilometro 3 ya le he empezado a meter el turbo poco a poco. Hasta que en los kilómetros finales le he pisado fuerte para acabar los 10k en una marca de 5:44. Hoy bastante bien para volver a coger ritmo y tiempo para que se acostumbre toda mi maquinaria. Al final ha sido un tiempo de 1:06:00 con una marca de 6:36. Estoy muy contento de seguir así y poco a poco ir mejorando. Así que mañana más y mejor. Hasta mañana! #stargardts #enfermedadesraras #aporello #aputotope #soyrunner #norendirse #iamready #yeahh #nuevosretos #jomasport #luanvi #axa #edp #ibercaja #123acorrer #vamosforrest🐝
Instagram media - cable car over the Gauja River // an hour after I took this photo, I found myself… 2129331881741728269
cable car over the Gauja River // an hour after I took this photo, I found myself stranded on the side of the Latvian interstate with barely enough money for bus fare, my phone on 10%, and an hour to wait until the next bus. (Spoiler alert: everything turned out okay) . . . . . #doyoutravel #exploremore #exploringtheglobe #ilovetravel #instapassport #instatravel #roamtheplanet #stayandwander #travel #travelgram #travelblog #travelblogger #travelbug #traveljunkie #travelphotography #travelpic #stargardts #stargardtsdisease #stargardt #legallyblind #blindphotographer #blindphotography #latvia #sigulda #siguldalatvia #visitlatvia #cablecar #siguldaadventures #siguldacablecar #travelstories
Instagram media - 👏👏 Well done to the amazing Sian Annakin for raising money for Stargardts Connected… 2129117037065509010
👏👏 Well done to the amazing Sian Annakin for raising money for Stargardt's Connected by doing a 10K run. Both of her daughters were diagnosed with Stargardt's last year. 🙌 Sian has raised an impressive £513 which is fantastic. There is still time to donate if you would like to: https://www.justgiving.com/fundraising/sian-annakin #stargardts #stargardtsdisease #stargardtsconnected #visuallyimpaired #doingitforfamily #visionloss #visualimpairment #10krunner #raisingmoneyforcharity #amazinglady #thisgirlcanrun Picture descriptions: Sian Annakin in yellow running vest with her two daughters after her 10k race.
Instagram media - Lucky 🍀 7 done once again. If you think you cant get an amazing workout done it… 2128593026141306178
Lucky 🍀 7 done once again. If you think you can't get an amazing workout done it 30 mins you haven't done Lucky 7 and beast abs . What a combo 💥 first pic with the new tatt ❤️ it. New P.Bs on deadlift 257lbs for 8 reps on a drop set and 280 lb squat for 8 reps again on a drop set 💥 feel the burn baby 🔥 #blindness #stargardts #bodybeastlucky7 #dedication #shredding #fitnessmotivation #fitness #mensphysique #6pack #garagegym #muscle #vegan #gains #veggie #eatlikeyougiveafuck #healthyfood #endurance #healthyliving #strength #powerblocks #nevergiveup #protein #fitdad #fitlife #fitfreak #fitnessforlife #homeworkouts #musclegains
Instagram media - I’m interested in hearing other peoples stories on Instagram but found that I was… 2128310208073308554
I’m interested in hearing other peoples stories on Instagram but found that I was getting massive head aches from reading them even with the zoom assist on my phone. It would be amazing if social media was connected to your phone settings and had the assistive options to have large print so I would be able to use social media without struggle. The only way I can do my posts is by writing them on notes as the writing is set to the largest font and then copying and pasting it into Instagram. The struggles of writing posts can be tiring. As silly as it sounds it takes time and patience to make one post, a lot of effort. I basically have to write everything on notes, re read it to make sure it is spelt correctly as I’m unable to read what I’m writing at the time. When I do hashtags I can see exactly what I’m writing cause of the size on Instagram. I love writing I just wish it was easier to write things through social media without all the extra work. #writing #reading #readingstories #assistivetechnology #accessability #largefont #textsize #socialmedia #time #makingapost #newzealand #queenstown
Instagram media - Really struggling today with this disease I’m hating everything about it! All the… 2127819103813947938
Really struggling today with this disease I’m hating everything about it! All the changes but mostly the unknown of if these changes will keep happening! Feeling fed up today! #struggles #stargardts #visonloss #sightforkay
Instagram media - Primer Cross y primera carrera con @forrestgumpteam completado con éxito familia… 2127748863231124086
Primer Cross y primera carrera con @forrestgumpteam completado con éxito familia de Instagram. La semana pasada @pais7cero me mandó y me propuso la idea de hacer esta carrera en Sevilla La Nueva como homenaje a Hector Valero y que mejor acompañado que por mis @forrestgumpteam Y así hice. Me pareció un buen inicio de temporada y la verdad es que ha ido genial. La carrera absoluta salía a las 10:30 de la mañana. En los primeros kilómetros salí a un buen ritmo que pensé que no iba a poder con ello. Pero una vez más reto a mi cabeza a decirle que si que puedo. Y en efecto, de la duda de no poder en el primer kilometro fui cogiendo confianza y fui subiendo de ritmo a partir del kilometro 2. A la altura del kilómetro 3 me empieza a entrar el flato y en vez de parar lo que hago es bajar el ritmo que estaba llevando. En los tramos finales hacia el 5:95-6:00 se me hace más ligero de lo que había hecho hasta entonces 😁💪🏻 Entro en los metros finales antes de entrar a la meta, cuando el cuerpo me pide que dé un sprint que no me creo ni yo lo que estoy haciendo. Entro en la meta agotado 🥵, pero feliz 😅😁 He conseguido acabar mi primer Cross de 7 kilómetros en 38:16. Dedico la victoria a mis abuelas, y voy corriendo a juntarme con mis Forrest, cuando veo la clasificación. Y veo que he quedado 70 de ciento y pico personas que corrían hoy. Me he alegrado bastante y me reúno con mis Forrest 🐝 Y bastante contento donde he conocido a gente que había coincidido en demás quedadas como @xavi_a_tooope o @vanezrunner (enhorabuena otra vez desde aquí) que seguro que ya nos veremos en algún entrenamiento o carrera más! Así que hoy y mañana descanso y volvemos el lunes con más carga. Así que hasta pronto familia! #stargardts #enfermedadesraras #aporello #aputotope #soyrunner #norendirse #iamready #yeahh #nuevosretos #jomasport #luanvi #axa #edp #ibercaja #123acorrer #vamosforrest🐝
Instagram media - 🇦🇿Eyni xəstəlikdən əziyyət çəkən iki qardaş-Ştarqart xəstəliyi! 🇬🇧 Two brothers… 2127712974029243122
Instagram media - Last week we we were on holiday stuffing our faces with ice cream. I can’t believe… 2127696388644178547
Last week we we were on holiday stuffing our faces with ice cream. I can’t believe that in a couple of months it’s our 10 year wedding anniversary 💙 I don’t know where those 10 years have gone since our wedding day, but what I do know is that I couldn’t have got through them without this one by my side. . . . Picture description - Greg and I standing side by side. I have a a little tub of ice cream and Greg has an ice cream in a cone and we are smiling at the camera with shops behind us. . . #HusbandAndWife #Soulmates #10YearweddingAnniversary #Stargardts #SightLoss #TogetherForver #UkBlogger #MumBloggerUk #CornwallHoliday #Tbt #WifeForLife #ChildhoodSweethearts #DiscoverUnder5k #memories #MemoryMaking #MumOfBoys #UkBlogger #KatiesVision #LookingBack #NewMemories #MyBestFriend #Love #HappilyMarried #Support #Loyal #Adore #Blogger #BloggerLife
Instagram media - Yesterday I was walking home with my cane and I almost bumped into someone with… 2127665086344044378
Yesterday I was walking home with my cane and I almost bumped into someone with a dog. I was confused, he kept walking next to the wall I was walking next to. At the last moment he moved away from the wall. When we passed each other I saw that he was wearing a fluo vest and his dog as well, and he was wearing sunglasses too even though it was cloudy. I realized this was a visually impaired or blind person too! I said I'm sorry I didn't see you, I am visually impaired too and I almost bumped into you with my cane! Good that you have your guide dog with you 😊 He laughed and asked my name and we talked for a while about vision loss and guide dogs. He lives in the same town as me, and I'm sure we'll meet again occasionally when we're on the go 😊 it's nice to share experiences with people who go though the same process. We shared about how stressful it is to walk in the city and cross streets without a cane or a guide dog as a visually impaired person. The small things everyone takes for granted, takes so much energy from us and we don't even realize it sometimes. Self care and rest are so important for us, I keep reminding myself because I forget so easily, but when I push myself too hard the aftereffect hits me hard. Some days my eyes feel like I have been punched in the face, so I'd rather take it easy and take my cane than trying and failing to do it all by myself. Chronic stress is one of the most damaging processes in the body. Short stressors for a presentation or new activity are good, but constantly feeling unsafe and stressed is not good for us, take care of yourself by doing less and you'll feel more energy, contentment and love. So that you can be there for yourself and the people around you. The only things that really matter anyway
Instagram media - Working hard ahead of our tour to England in October for the Australian vision impaired… 2127660393672698318
Instagram media - Painting I did in oil, magnoliaa flowers and bird. I based my work on the work of… 2127602097041614435
Painting I did in oil, magnoliaa flowers and bird. I based my work on the work of another artist, but I can’t find the original piece or artist name. If anyone knows it, please let me know so I can give him/her te credit for this beautiful composition and color choices 😊 Had a lot of fun painting this one, and my parents have the painting hanging on their wall in the living room 😘
Instagram media - How do #legallyblind people without central vision PAINT? This is how I do it. I… 2127596461851421702
How do #legallyblind people without central vision PAINT? This is how I do it. I go REALLY close to my painting with my whole face 😅 Also I use my hands alot, which doesn’t always make the painting better I have noticed 🙈 But I don’t care how messy it gets or how weird it looks, I love painting, creating, discovering. #doityourway
Instagram media - A burger and fries is always better then just fries 🍔 🍟 Welcoming the VISIONARY… 2127574573959828556
A burger and fries is always better then just fries 🍔 🍟 Welcoming the VISIONARY // DNA combo 👁 Grab both the Hoodie & DNA long sleeve tee for just $85 🔥 SAVE $20 #SALE Available now online at mattdegruchyvision.com or in person 🛒
Instagram media - 🙏 Grateful. 2127573743646940293
🙏 Grateful.
Instagram media - Entrenamiento antes de la carrera de #correxhectorvalero completado con éxito familia… 2127061009421241671
Entrenamiento antes de la carrera de #correxhectorvalero completado con éxito familia de Instagram. Hoy tocaban 6km a un ritmo ya normalito pero para empezar a subir el ritmo. Al final me lo he hecho en 45:43 y mejor que el otro día. Hoy contaba con los suplementos de @jaimetorresbermudez que han ido genial, los gemelos apenas se han montado y no he notado ninguna contracción. Así que de fábula. Las pulsaciones las he tenido normal. 170pp. Y he ido a un ritmo de 7:37 que vamos a ir mejorando poco a poco. Pero para ir empezando yo creo que está resultando bastante bien. Mañana es la carrera de #corriendoxhectorvalero en Sevilla La Nueva y vamos a ver qué tal salen los 7 kilómetros que mejor acompañado imposible. Por mis @forrestgumpteam Así que mañana os veo familia con la carrera y con más novedades. Hasta mañana! #stargardts #enfermedadesraras #aporello #aputotope #soyrunner #norendirse #iamready #yeahh #nuevosretos #jomasport #luanvi #axa #edp #ibercaja #123acorrer #vamosforrest🐝
Instagram media - Anyone else notice their blindspot/blurry patch in their central vision then they… 2127055743597563747
Anyone else notice their blindspot/blurry patch in their central vision then they can't not focus on it so they end up almost walking into everything and nearly missing the bus because they're so set on this blur even though you know you should just relax your eyes? Yeah. Me too 😂🤦‍♀️ I don't know why I do it and if it's even normal to focus onto looking through this patch of loss or whatever you want to call it but I find myself doing it on a daily basis or I'll notice flashing and then try see if I can see the same flashing elsewhere when I look about and it's becoming a bad habit! . • #ThatBlindishMum #MumBlog #Blogger #VisuallyImpaired #RNIB #SightImpaired #SightLoss #Stargardts #MacularDystrophy #Motherhood #Son #Blogger #MacularSociety #Equine #Equestrian #BlindRider #HonestMum • . PHOTO DESCRIPTION: An underground subway with white walls with green and black graffiti down the walls, the floor if grey and dirty. The image increasignly blurs as the subway comes to the exit which is a grey scale blur. Image mimicks how I see this underground subway as I'm walking through it.
Instagram media - Stargardt disease . - Stargardt disease is a form of macular degeneration, and is… 2126927486880455469
Stargardt disease . - Stargardt disease is a form of macular degeneration, and is often called juvenile macular degeneration - Rare inherited condition affecting one in 8,000 to 10,000 people. - The most common cause of the condition is genetic. There are three genes which have been associated with Stargardt’s: ELOVL4, PROM1 and ABCA4. - Vision loss from Stargardt's generally begins to show up within the first 20 years of a young person's life, particularly in early childhood - Signs and symptoms similar to AMD, - UV-blocking sunglasses can offer some protection for remaining vision. At the moment, Stargardt’s is untreatable. - Stem cell trials for Stargardt’s are ongoing. . . . . . . . . . Disclaimer: * This is NOT Clinical Advice or Management. * Just sharing #Chakshu #Camden #London #theregentspark #primrosehill #AMD #Stargardts #opticians #conjunctiva #conjunctivitis #eye #pathology #lenspathology #redeye #hyperaemia #oedema #eyelid #Optometry #eye #vision #painful #conjunctivitis #pain #lenses #pathology #posterioreye #retinopathy #Providesightcreatevision #ophthalmologia #medstudent
Instagram media - came home from a busy congress we organized work yesterday, and there was my boyfriend… 2126836751191927607
came home from a busy congress we organized work yesterday, and there was my boyfriend surprising me with white roses 😍 This congress is a very challenging day for me because it involves a lot of seeing and checking, informing people and making sure all runs smoothly. Although I was well rested and prepared, and we have a great team, I still had a bad headache and eye strain coming up after noon. It's part of having low vision and I can accept that. We had a great event and I am very happy woth how it went. And coming home to a partner who understands how hard it is and encourages me to rest and take time to regain my enerrgy is amazing. I'm so grateful to have him in my life 🥰 in this picture. I'm holding white a rose in my hand, in the background is a black bag with a white cane and white roses in a black vase. There is a white blanket on the couch next to the little table on which the vase stands.
Instagram media - Entrenamiento del 5 de septiembre completado con éxito familia de Instagram. El… 2126485755770519107
Entrenamiento del 5 de septiembre completado con éxito familia de Instagram. El otro día, hablando con @p.cabuli de las diferentes pruebas de la temporada entre ellas la @mediomaratonvlc hemos decidido cambiar el programa ya que los ritmos de la carrera no lo estaba cumpliendo al 💯% Así que hemos cambiado el plan y hemos decidido empezar desde cero para ir mejorando la velocidad para intentar bajar de la marca de la anterior media maratón: 1h56:26. Nos quedan dos meses casi y por el camino hay carreras como la de este sábado #correxhectorvalero en la que intentaremos hacer una buena marca y seguir avanzando hacia la #carreradelcorazon que también intentaremos bajar de la marca de 51:26. Así que ahora a recuperarse y mañana a por el siguiente entrenamiento. Así que os veo mañana familia! Hasta mañana #stargardts #enfermedadesraras #aporello #aputotope #soyrunner #norendirse #iamready #yeahh #nuevosretos #jomasport #luanvi #axa #edp #ibercaja #123acorrer
More Posts